Joined: Oct 2008 Gender: Female Posts: 83 Karma: 4
Re: Neurofeedback « Reply #15 on Feb 5, 2009, 1:12pm »
Shelly,
Thank you so much for taking the time to update us about your improvements, and to detail your treatment protocol. I'm very happy for you, and it has given me some hope as my situation seems to be declining.
I was interested to hear the results of your liver test. I've decided to get the same test done as soon as my tax refund shows up. I'm going to avoid the caffeine/Tylenol one for now, because like Beebs, I'm wary of ingesting anything and seem to have become more sensitive to medications and supplements, foods, etc.
Quick question, did you do any testing for the food sensitivities you mentioned having? I'm thinking of doing that as well.
I also must thank you for the timing of this thread, as it prompted me to look into neurofeedback as a treatment option again (I had started to when dezaquin first posted, but it fell off my radar). Maybe I don't need all the tests the integrative doc recommended, and can save some money to spend elsewhere.
Once again, I'm happy that you've seen so much improvement and that you have doctors who are helping you get well.
Keep us posted on the liver treatments and everything else. I'm sure lots of people will find this thread valuable.
That is interesting about the Manuka honey & the CYP450 pathways. I'll have to start taking it daily again. (I cut out all of my supplements to figure out what I'm reacting to, but I'm pretty sure that's not it.)
Oh, and an extra thanks to Arel from me, too, as well as to everyone who has spent time emailing and talking to me. I can't imagine how much worse off I'd be without a network of people who understand.
One more question: was your neurofeedback divided into a number of sessions? If so, how many did you have?
Joined: Mar 2008 Gender: Female Posts: 1,835 Karma: 60
Re: Neurofeedback « Reply #16 on Feb 5, 2009, 1:43pm »
Shelly: absolutely spot on again, going slowly about the liver, repair, and then try raising glutathione... I am curious if you tried by taking its precursors, such as ImmunoPro whey in tiny tiny doses? I am able to tolerate this, but, definitely not coffee, tylenol, and the rest. Even difficulties with vits & supps as it is.
Methylation is also worth looking at because it is linked.
I am also taking the slow approach, towards mending and healing rather, that seeking quick fixes that may cause more damage.
Joined: Mar 2008 Gender: Female Posts: 31 Karma: 7
Re: Neurofeedback « Reply #17 on Feb 5, 2009, 2:15pm »
I did try the whey product (ImmunoPro and ImmunoCal) for a short period of time. I will be introducing this again in a few weeks. Like you said, my doctor wants to procede slowly so I don't become more ill as the pathways open. To fast can cause die-off or herx reactions.
Joined: Mar 2008 Gender: Female Posts: 1,835 Karma: 60
Re: Neurofeedback « Reply #18 on Feb 5, 2009, 2:26pm »
I started very slowly and over a period increases dosage, and it is very very helpful, yet, I still can't tolerate other things, but improving, nevertheless. The severe cognition which brought me to tears after seeing results from neuro tests, has now also improved, as has fluctuating moods...
Here is a basic list of supps for maintenance (if healthy) also recommended for DNA methylation:
Betaine (TMG) Choline Folic Acid Vit B12 & Vit B6 Zinc Vit E Fish OIls Inositol Selenium Methione
And other supps.
An excelent easy to read book "Methyl Magic Maximum Health through Methylation" by Craig Cooney, Ph.d with Bill Lawren.
Proceed with caution under the supervision of an MD, or bio-molecular doctor, taking baby steps, going through different stages, different supps, tailored for your own individual requirement.
Nutreveal Test at Genova Diagnostics is also helpful. It is expensive, and I certainly can't afford it, but those of you can, it is well worth it according to those who had it done.
Also SoDase testing is supposed to be good, I am having this one done in the next couple of weeks. The ATP/ADP test is also important to look at blockages in methylation, and further tests will look at various metals etc. I had it done a couple years ago, and only wished I had it done earlier!!! A paper was recently published concerning and is also posted here. If it is not, I will post it later.
I did try the whey product (ImmunoPro and ImmunoCal) for a short period of time. I will be introducing this again in a few weeks. Like you said, my doctor wants to procede slowly so I don't become more ill as the pathways open. To fast can cause die-off or herx reactions.
Joined: Mar 2008 Gender: Female Posts: 31 Karma: 7
Re: Neurofeedback « Reply #19 on Feb 5, 2009, 3:03pm »
Anomalied-
I went in 1 -2 times a day for NF and 1 - 2 times a day for the EFT training. Because of the adjustment in brainwaves, it kicked up my ADRs quite a bit for about 2 weeks, with some breaks in there.
I haven't done the food sensitivity tests yet. What I can tell you is that I couldn't consume soy at all before I went to Colorado and am now taking soy lecithin in my supplements without problems. I still eat oranic meat, but I am adding more and more into my diet each week. Just being able to consume supplements again is a huge gain for me. I would get so sick on them before.
I feel funny speaking for Desiree, so I hope this is ok that I am sharing you info Desiree. She did BioMeridian testing, which is FDA approved, to check her meridians and how her body systems and organs were working. When she began, her test came back very elevated. After neurofeedback and working with her nutritionist, her test results had greatly improved. She showed me the two tests side by side before she returned home. It was amazing. I have thought about doing the same. But I need to find a good practitioner close to me.
I hope this helps.
Beebs,
It looks like my doctor is doing the right stuff with me. All of those supplements you listed are in the K Pax powder that he has me on plus more. The fish oil is extra and is not included in the powder. He used this for himself when he was recovering.
I also want to note to everyone that even though I am sharing this with you all, I agree with Beebs that you should be doing this under a qualified doctor. These supplements can be purchased online, but can cause problems that only a good doctor will be able to deal with. My doctor said that as I increase supplementation, I can get detox symptoms. From what I have been told and what I have already read, methylation should be only conquered under a doctor's guidance. Some people can become very sick initially.
I also want to mention that I am just sharing what has worked with me so far. I don't want anyone to make themselves more sick by jumping into this on their own, as this is what happened to me after my glutathione experience. I wish I would have proceded slowly and knew the info about my liver before attempting any detoxing. So please be careful. My doctor said that it is really important to check liver status and for digestions problems before proceding with any detox. Your doctors may know more.
The one thing I can say is that the Neurofeedback is non-invasive, putting nothing into the body. There are no recorded adverse reactions to this therapy. But you still want to make sure you are with someone that knows what they are doing.
Joined: Mar 2008 Gender: Female Posts: 1,835 Karma: 60
Re: Neurofeedback « Reply #20 on Feb 6, 2009, 6:42pm »
After reading some posts about glutathione, and why some reacted, and do not improve.
There is a metabolic reaction that happens with neurotypical people to convert methionine to glutathione. Methionine is acted on by MAT to create SAME. After which it is used to create SAH, then Homocyesteine, Cystathionine, Cysteine, and finally Glutathione.
The Glut is used to remove toxins from the body and starts detox process, but then, the Glut gets reconverted into Methionine. This cycle pathway repeats itself.
Part of the reason why people should go easy on glutathione is explained into this metabolic process during methylation.
It is a sulphur amino acids, and this also an irritant to some.
In any case, some were supplemented with Folinic Acid and Betaine. Methionine, Cysteine, and Glutathione resulted in a 2-fold increase in the ratio of reduced (active) to oxidized (inactive) glutathione. = After the extended intervention period, SAM levels increased to 112 nmol/L, SAH levels decreased to 17 nmol/L, and adenosine levels decreased to 0.18 µmol/L; all well within normal ranges.
Basically, glutathione injections would not work, or simply supplementing with glutathione.
According to Dr. St. James, micronutrients supportive of methionine synthesis include:
Zinc: MS, BHMT, and methyltransferases are zinc-dependent enzymes involved in methionine cycle.
Folinic Acid: Supports nucleotide synthesis by increasing 5,10-methylene THF; supports methionine recycling by increasing 5-CH3THF.
Betaine (trimethylglycine): Substrate for BHMT; increases BHMT expression and activity
Methyl-B12: Replaces need for methyl group transfer from 5methylTHF: potential for trapping folate as 5-methyl-THF and reducing synthesis of metabolically active THF
Choline: Spares phosphatidylcholine breakdown to betaine for BHMT-mediated methionine synthesis
Dr. St. James also recommends the following micronutrients and precursors to support glutathione synthesis:
Glutathione methyl ester.
N-acetylcysteine: Stable form of cysteine that readily crosses cell membrane and increases intracellular gluthatione levels; toxic only at extremely high doses (1.5 gm). (Note from Autism Coach - some children within the autism spectrum do not do well with this supplement.)
2-oxothiozolidine -4- carboxylate (OTC): Stable derivative of cysteine that is readily converted to cysteine and increases glutathione synthesis.
Vitamin B6: CBS and cystathionine lyase are both B6 dependent enzymes that are involved in the transsulfuration of homocysteine to glutathione.
Selenium: Glutathione peroxidase is a selenium-dependent enzyme; selenium deficiency is common in malabsorption and gastrointestinal disease.
Glutamine: Glutamine enhances gut glutathione production. ( glutamine can be problematic for some) so look this up!!!
Antioxidants: Vitamin E, vitamin C, lipoic acid.
Anyway, this shows how complicated the process is, and it is best to be under the supervision of an MD who is up to date, or a Ph.D in biochemistry or biomolecular medicine... this is why I find it hard to believe anyone improved on Glutathione IV. Be careful of the spin and money making doctors out there, most do not understand or both reading on the synthesis and biochemistry involved here. Likewise, liposomes glutathione will not work either, not on its own anyway.
Joined: Mar 2008 Gender: Male Posts: 519 Location: Cardiff Karma: 11
Re: Neurofeedback « Reply #21 on Nov 6, 2009, 5:40pm »
i havent read this thread. Just seen what smilerach said.
Manuka honey cured my GERD, i had it for 4 years on and off, gastritis, feeling sick, loss of appetite, swallowing problems etc etc.... within 2 days gastritis went away, within a couple months i stopped taking the manuka honey and it has NEVER come back. I do keep buying it though as a preventative, and am currently taking 1-2 tea spoons a day.
The manuka honey might of killed off h pylori bug, this is my guess.
Joined: Oct 2009 Gender: Female Posts: 23 Karma: 0
Re: Neurofeedback « Reply #22 on Dec 3, 2009, 2:26pm »
Oh I totally agree on using E.F.T., I've been trying it for a while and it's great. I do prefer Robert Smith's version over Gary Craig's because Robert's is a combination of E.F.T. and N.L.P.
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Be careful of the spin and money making doctors out there, most do not understand or both reading on the synthesis and biochemistry involved here. Likewise, liposomes glutathione will not work either, not on its own anyway.
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